Only about one out of every 100,000. Verkkoroughly 6% of finns have a rare hereditary disease. According to minna pöyhönen, professor of medical genetics, the study of rare diseases. Verkkojohnathan sosbe is a senior at athens academy in crawfordsville, and on the outside he seems like your typical teen. But he’s living with the life. Verkkoa lynchburg woman battling a rare disease is sharing her story and hopes to inspire others in the process. Miriam rees is a fighter. Brynlee henderson is one of.